Involving patients and their representatives in guideline development
Patient involvement is “the appropriate, active participation of patients, carers and patient representatives as partners in their own care and in the planning, monitoring and development of health services”.
Patients may have different perspectives on healthcare processes, priorities, and outcomes from those of health professionals. We involve patients and their representatives to ensure that the guideline addresses issues that matter to them and that their perspectives are reflected in the guideline.
Patients can identify issues that may be overlooked by health professionals, can highlight areas where the patient’s perspective differs from the views of health professionals, and can ensure that the guideline addresses key issues of concern to patients.
Identifying patients ’views
We identify patients’ views by:searching for published studies that reflect patients' and carers' experiences and preferences in relation to the clinical topic
The information obtained from these approaches is fed back to guideline groups to influence the key questions underpinning the guideline.